Quote:
Originally Posted by PocketChads
Hey man, really sorry for your loss.
I'm curious what you mean about first person to ever be treated, though. My uncle died of muscular distrophy at age 18. He was a huge Braves fan, watched all the games on TV in the 70s, saw 715 live and all that. My grandmother (his mother) was a passionate baseball fan from Chicago (but moved to Alabama before my uncle was born, obv) and a big Cubs fan, who only added the Braves to her heart because of her son. If it wasn't for my uncle, I could have ended up a Cubs fan or Padres (my first T-ball team) fan or something terrible like that -- my grandmother sat me down when I was about five years old (living and breathing baseball at the time, but largely teamless other than the local minor league club) and explained to me why I should be a Braves fan.
When he was 9 years old, I thiiiink in 1990, he was the first person to have an experimental cell therapy treatment. Before this they had only tested ways to treat the disease on animals and the only thing that they could do for MD patients was to try to make their life more comfortable. All of the Jerry's kids donations were going to things like buying wheel chairs, hospital beds, etc.
Basically, they would take muscle cells from a healthy person, grow those cells (there's a word for it but I can't remember it... cultivate maybe?) and then inject those cells into the patient. My buddy's dad, who's a natural born badass, was the first person to have the muscle cut out. That first time though, they weren't sure if anastasia would mess things up... they gave him something to bite down on and cut the **** out. Later, they tried with anastasia and his dad, me, his cousin, and another friend of the family did it. I'm not sure of how successful it was (it certainly seemed like it made a huge difference for him) but since then the idea of treatment and eventually, hopefully, a cure has become more accepted as a possibility by the rest of the medical profession.
Back when all of that was first going on, Sam was called the "pioneer of cell therapy treatment" and they parade him all over for interviews and whatnot... he was on the Today show and a bunch of other stuff and in our hometown they made a civic holiday called "Sam Looper Day" where they would shut down Main St. and have a big festival and auctions and ****. He lived an amazing life for a guy with Duchenne Muscular Dystrophy.
He was a HUGE Braves and Clemson basketball fan.
As for not getting back with your grand mother about the crossword... I can feel your pain, I had all kinds of free time after poker went down but only went back home and hung out with him a handful of times during that 6 month period.
It feels ****ty but, much like I get the feeling you were with your grandmother, there were a hundreds of hours/days where I was there.