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Wilson's Low Temperature Syndrome Wilson's Low Temperature Syndrome

06-17-2019 , 12:13 AM
Quote:
Originally Posted by unfrgvn
I appreciate the feedback. I have to agree with TC, that problems in this area are not well understood. So if your Doctor can't make a quick diagnoses, what is your choice other than to try to figure it out yourself?
The other choice is to just live your life. Perfectly healthy people get headaches, sometimes frequently. Chiari malformations are extremely common and unimportant. Healthy people have temperatures that go above and below 98.6. Perfectly healthy people sometimes even poop. Etc. Etc. Etc.

Thremp most likely got your diagnosis correct. The treatment is to stop googling every random normal sensation that you have.
Wilson's Low Temperature Syndrome Quote
06-17-2019 , 09:05 PM
Quote:
Originally Posted by BrianTheMick2
The other choice is to just live your life. Perfectly healthy people get headaches, sometimes frequently. Chiari malformations are extremely common and unimportant. Healthy people have temperatures that go above and below 98.6. Perfectly healthy people sometimes even poop. Etc. Etc. Etc.

Thremp most likely got your diagnosis correct. The treatment is to stop googling every random normal sensation that you have.
I'm 58 years old. I lived the first 57 without my symptoms. I know the difference between feeling like crap for 5 months and feeling "normal". I actually feel better now then I did 3 months ago, but not "normal". I'll let you know when I feel right again.
Wilson's Low Temperature Syndrome Quote
06-17-2019 , 11:34 PM
Quote:
Originally Posted by unfrgvn
I'm 58 years old. I lived the first 57 without my symptoms. I know the difference between feeling like crap for 5 months and feeling "normal". I actually feel better now then I did 3 months ago, but not "normal". I'll let you know when I feel right again.
You sound like you feel like a normal 58 year old. I imagine that this is the first time you have felt 58.

I'm 48 and have a really bad headache right now and feel sluggish. I probably won't think too much about it.
Wilson's Low Temperature Syndrome Quote
06-18-2019 , 12:53 AM
People are actually really bad at determining how they feel or how they are responding to treatment in the absence of detailed notes typically with some sort of relative quantitative metric. (RPE for example)

So no, you likely don't know the difference between feeling like crap and feeling "normal".

These sort of nefarious cognitive biases are what lead normal people like you into believing weird pseudo-scientific bull**** that is likely going to harm you. For example, you probably don't intentionally lie about positive behaviors, but you almost certainly do: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5639921/ In the same way you likely overstate your ability on certain things: <see any driving self assessment>. In reality you'll probably "cure" your entirely fake problem via cognitive action bias, so whatever. Hopefully the T3 doesn't kill you.
Wilson's Low Temperature Syndrome Quote
06-18-2019 , 08:08 AM
Quote:
Originally Posted by BrianTheMick2
You sound like you feel like a normal 58 year old. I imagine that this is the first time you have felt 58.
I don't mind feeling 58. Feeling 80 at 58 sucks.
Quote:
Originally Posted by BrianTheMick2
I'm 48 and have a really bad headache right now and feel sluggish. I probably won't think too much about it.
Come talk to me in 10 years. You won't feel any better than you do today.


Quote:
Originally Posted by Deeply Miserable
People are actually really bad at determining how they feel or how they are responding to treatment in the absence of detailed notes typically with some sort of relative quantitative metric. (RPE for example)

So no, you likely don't know the difference between feeling like crap and feeling "normal".

These sort of nefarious cognitive biases are what lead normal people like you into believing weird pseudo-scientific bull**** that is likely going to harm you. For example, you probably don't intentionally lie about positive behaviors, but you almost certainly do: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5639921/ In the same way you likely overstate your ability on certain things: <see any driving self assessment>. In reality you'll probably "cure" your entirely fake problem via cognitive action bias, so whatever. Hopefully the T3 doesn't kill you.
It must be awesome to be the only person on this board that even knows how he feels. Of course, I'm one of the 90% of people that says I'm an above average driver, how can I be trusted to know how I feel?
Wilson's Low Temperature Syndrome Quote
06-18-2019 , 08:23 AM
It is quite nice actually. I'm giving identical advice that is given to every fat person/novice exerciser/etc. If I didn't have actual detailed notes about nagging injuries, weird back issues, etc in my workout log, I'd likely say I was "pretty healthy". But instead I can go leaf through my notes and recognize injuries, sets terminated due to weird pressure in my knee, elbow pain flaring up, etc.

People keep logs because they actually work, whereas your memory for "Oh I felt great" is basically totally useless. That is aside from the fact that you self-diagnosed a total bull**** ailment, and then somehow abused the medical system into giving you a drug that you don't need, which seems totally ****ing insane to me. (And the weird semi-cure of your supplement cocktail which is even stranger. But psychological illness probably has the same cure? I guess people with electromagnetic sensitivity feel genuine pain when someone turns on lights? I dunno.) But it is your life. I just hope that people reading this in the future find this as disheartening and sad as I do.
Wilson's Low Temperature Syndrome Quote
06-18-2019 , 08:48 AM
Quote:
Originally Posted by unfrgvn
I don't mind feeling 58. Feeling 80 at 58 sucks.
You have a variant of "medical student disease."


Quote:
Come talk to me in 10 years. You won't feel any better than you do today.
I am aware of that. It is perfectly normal.

Quote:
It must be awesome to be the only person on this board that even knows how he feels. Of course, I'm one of the 90% of people that says I'm an above average driver, how can I be trusted to know how I feel?
You are correct - You can't. Also, Thremp can't either. Only people who can wiggle their ears can be trusted to know their body well enough to self-diagnose issues.
Wilson's Low Temperature Syndrome Quote
06-18-2019 , 09:37 AM
Quote:
Originally Posted by BrianTheMick2
You have a variant of "medical student disease."
I don't think so, but let me research it to see if that could be it.
Wilson's Low Temperature Syndrome Quote
07-21-2019 , 05:04 PM
Guess I'll put a bow on this. I tried the therapeutic trial of the t3. I felt better on the low doses of t3, but when the dosage increased I didn't feel as good. I'm now back off the T3 and I'm going to monitor how I feel and my daily temperature. My temperature increased on the T3, but only marginally. My blood pressure went high (150/90) so I was glad to cycle back down. Sitting here typing this I feel pretty good, but I have to say I'm not sure if it is due to the T3. I'm back to riding my bike, albeit very slowly!
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