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Originally Posted by MeLoveYouLongTime
Went back to the neurologist today. The appointment was a mess, she was a mess. I started asking questions and she said it was only a nerve testing appointment and she seemed really frazzled. I explained what happened with MRI scheduling mess-ups and it seemed a lot of patients had been complaining about the same thing. She had a staff turnover the last month. I felt really bad for her and changed the subject. We were discussing electrical noise and the equipment she was using
....it was pretty cool.
Anyway, there is severe nerve damage in my left arm and see in my right....don't know why yet. She said she would look at the data more and send me the report soon.
Didn't have time to go to the gym today, but I did get 20mins of walking in when I got home.
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Originally Posted by MeLoveYouLongTime
Yes to all of that. I am taking this seriously. Main focus is on calorie targets and exercise. I'll weigh in after my period.
Some concerning news. My neurologist updated my chart today with Multiple Sclerosis under conditions. No phone call, nothing. She said she was going to review the nerve testing and send me a report, call me to set up the spinal tap and that we would review everything in our next appointment in a couple of weeks. She was really frazzled during the appointment, so I'm hoping this was some kind of error as I haven't had the spinal tap to confirm MS yet.
Catching up; often, things have to be coded in as reasons for tests insurance companies will pay for. As you already know you have another test to confirm MS, then you know it's not confirmed. Think of it as a "work-in-progress diagnosis" not the diagnosis. It's a placeholder that can be changed.
Sorry to hear your doctor was frazzled and the appointment was a mess. Play it out but look around a bit and be ready to make a change if it happens again. You might even go ahead and make an appointment with another neurologist (and this time you would be able to wait a couple of months if need be) which you could always cancel if things work out with this one OR you could use it for a second opinion and consider someone else's approach. You need to have confidence in this doctor--not sympathy.
You know that show 'the Good Doctor'? It's hilarious they depict a doctor with autism as some sort of groundbreaking endeavor when practically every neurologist is obviously on the spectrum; "It was only a nerve testing appointment" as if a patient is supposed to know that and not be emotional about a potential life-altering medical condition after hearing the words "severe nerve damage". Can't tell you how many times I've actually said the words, "Uh, I didn't go to medical school...
doctor" but I know it was twice today (so far).