Quote:
Originally Posted by BoredSocial
Yeah... any academic study that doesn't show that end of life costs (the last 1-5 years depending on how long it takes for your final illness to kill you.. this means I'm lumping all alzheimers patients into 'end of life care') are where most of our lifetime health spend goes for the average person have been cooked somehow.
Here's what I know anecdotally, and unfortunately I have a large sample size because of who I am, who I'm related to, who I'm married to, AND where I live... (son of someone whose end of life expenses were literally 5x his lifetime expenses up to that point who is also a health insurance agent who sold medigap and medicare part C plans, an actuary, a nurse, Louisville KY which means I know a lot of people who work at Kindred and Humana)
We spend an ungodly amount of money on the people in nursing homes, the majority of which are deeply unhappy and in the (hopefully!) last years of life. When I say ungodly I do mean ungodly. 15-20k a month isn't remotely uncommon including pharma costs. Most spend 50-100k right at the end on a combination of pharma, surgery, and about a hundred other things that could magically get not included or allocated differently in a study.
One of the important things to realize about health care statistics is that nobody knows anything. The paperwork is so complex that there is a call center located <50 miles from me that pays hundreds of people 50-75k a year to help their clients subrogate their insurance claims. This means that there are hundreds of mid level employees whose entire job is to figure out how to get someone else to pay for the claims.
When there are enough legalities, fine print, and designed complexity (and medical billing is nothing if not intentionally misleading) it becomes possible to make the data say anything you want.
Every other country in the world has universal healthcare, which means medical rationing. When the conservatives go on and on about waiting lists that isn't actually made up. Thing is, maybe those waiting lists are a feature and not a bug?
Bottom line is my dad got a 150k surgery 2 months before he died. He got the surgery so that he would qualify for a chance at a clinical trial. There was no chance the surgery was going to save his life or anything, it just gave him a 50/50 chance of getting a trial which game him a 2-5% chance of living an extra year. Anybody who tells me that wasn't a normal experience in our healthcare system hasn't worked in a nursing home (my wife did for 5-6 years).
Your dad potentially getting in a clinical trial that has potential to lead to some sort of breakthrough has some real and substantial value.
Improving end of life care and pursuing it ultimately creates a potentially greater quality of life for a substantial portion of time. I mean people used to often be on deaths door at 40. Should we have just said, we’ll its way to expensive to try and take care of people over thirty five so let’s just blade runner them.
And the reality is there are real cost issues now in terms of what hospitals charge. It’s entirely possible the similar surgery could have randomly cost between 25k to 500k depending on which hospital just because hospitals often literally just charge whatever.
Until we are able to attack that it doesn’t even make sense to determine how much is REALLY being required to be spent on end of life care because we do not actually know.
You are right on nursing home care. It is absurd. A couple years ago we had to deal with both my parents being in nursing homes and you were pretty much looking at 7k-15k a month just for basic living in a rundown facility in an undertrained and understaffed facility.
Medicaid pays for this for most people but there are some weird cracks. If someone has the assets they have to pay themselves. You can spend down and use trusts and other devices to get there but like with my dad the fact that his social security was maxed out meant it was impossible for him to qualify for Medicaid coverage for staying in a nursing home.
We have a whole different discussion that needs to be had about how we are caring for and managing our elderly but it unfortunately doesn’t come first. I basically cared for both my parents by myself for awhile. My mom didn’t really get bad until the last couple of years but my dad had advanced dementia that required extreme attention for about ten years before they died. Honestly physically and mentally it was extremly difficult. Eventually it became too much though and we had to look at other options. My mom got really sick which triggered a series of events where both my parents died about a month a part in 2016. They only had minimal time in nursing homes but I still struggle with that as I still don’t know if I could have coped with them living that way.
Again though this is all cart before the horse stuff now. We already have enough resources to cover how people are being treated now and that includes significant overpayments. We have to sort out the basics of health coverage before we can deal with end of life care at all.