I'd be pretty surprised if this was all anxiety. I didn't go too much into symptoms as I didn't want it to be the focus but there's a lot going on. But the human body is very complex so it's always possible.
Quote:
Originally Posted by King Spew
Get a second medical opinion if you have not yet. A major hospital with a research arm like Duke, Hopkins, Mayo etc may be your best ticket imo.
Have you traveled outside of the country just prior to illness onset?
I did not travel internationally prior to onset. Yup trying to get as many opinions as possible. Tried to get into Mayo and they denied me although I think that's because my neurologist is super unhelpful and didn't give a good recommendation. I'm going to push for it again in a few months. I'm pretty much at the mercy of the quality of my doctors. They are the gatekeepers. Changing docs leads to delays but I've done it where necessary.
Quote:
Originally Posted by despacito
How's your lifestyle now? eg. weight, nutrition, smoking, drinking, drugs, exercise type/frequency, relaxation, sleep, and social contact? I don't know much about you, but solving upstream lifestyle issues can sometimes help. I'd also cast the net wider for more medical opinions on the cause, and possible treatments. IANAD. Good luck.
My lifestyle was pretty healthy before this all happened. I ate pretty well, played soccer and lifted weights. I drank too much on weekends but that's about it. People considered me well built. That was up until about 4 years ago. These days I try to get into the gym and I'm utterly exhausted and in pain after about two lifts.
I've tried a bunch of crazy and not so crazy stuff from the internet in parallel with traditional western treatment and diagnosis. Currently trying an Autoimmune Protocol Diet to see if I observe any changes.
I'm trying to seek as many varied and alternative opinions as possible while trying to avoid the iatrogenic pitfalls of such things.
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Originally Posted by ahnuld
Could be fibro although there are things that don't point to fibro. Maybe I have fibro and something else? Just gotta keep grinding it out with the doctors and hopefully we come up with something.
Quote:
Originally Posted by nutella virus
Yeah for sure whenever I need medical advice I come to bfi too. Seeing how the covid thread went this all makes sense now
He didn't even ask for medical advice (bc it's bfi) but if my accountant starts offering therapy I'll take it bc it saves a trip downtown
It's not what I expected and some of it is off base and unlikely to be helpful but it seems well meaning so I'm ok with it.
Quote:
Originally Posted by juan valdez
It would be interesting to see where this goes down the road. Feel free to bump this with an update out of the blue
I will bump this when I have a resolution one way or the other. It always bothers me when people leave things hanging like this. Although the forums may be gone by the time that happens.